National Partnership – Dementia Care Resources
The National Partnership to Improve Dementia Care in Nursing Homes (the National Partnership) is committed to improving the quality of care for individuals with dementia, living in nursing homes. The National Partnership has a mission to deliver health care that is person-centered, comprehensive and interdisciplinary with a specific focus on protecting residents from being prescribed antipsychotic medications unless there is a valid, clinical indication and a systematic process to evaluate each individual’s need.
Below is a list of dementia care resources broken down into several categories. Click on the associated link to access a specific category of resources:
Handouts & Tools
A booklet that provides useful information to families and long-term care facilities personnel about Alzheimer’s disease and related dementias.
A fact sheet providing information about the behavioral and psychotic symptoms (BPSD) individuals with dementia often experience during the course of their disease and approaches to care that are utilized.
A brochure on antipsychotic medication and dementia.
A fact sheet to inform consumers about the use of antipsychotic medications for a person living with dementia and the potential risks associated.
A fact sheet on the components of providing quality care that is person-centered and individualized.
A fact sheet on the resident assessment process.
A fact sheet on the use of antipsychotic drugs for persons living with dementia.
Questions to ask persons living with dementia that alter traditional threatened response.
- Dementia Dialogues: Five Sessions to Educate Individuals Caring for Persons who Exhibit Signs Associated with Alzheimer's Disease or Related Dementia
A series of short videos providing quick tips that will enhance the ability to provide quality caregiving to persons living with dementia.
A toolkit (series of fact sheets) that provides information that can be used to support resident-centered advocacy for better care.
A flowchart that provides thoughtful guidance on dose reductions.
A quick reference user guide for commonly used antipsychotic drugs.
Ideas for reducing antipsychotic drug use.
An evidence-based tip sheet on consistent assignments, What, Why, & How.
A questionnaire guide key to helping nursing home staff develop and implement a better and more personalized care plan.
A competency guide for dementia-capable direct-care workforce development.
An evidence-based tip sheet on types of huddles, What, Why, & How.
A resource guide that offers a series of books, book chapters and journal articles that collectively address individual, family and organizational interventions as well as psychological and neuropsychological assessment of older adults.
A practical resource intended to support continuing care communities in their efforts to bring about culture change.
A process to support long-term care communities in their efforts to honor residents’ choices that influence quality of care and quality of life, while mitigating potential risks associated with those choices.
A form, which helps capture what is most important to share with others in an individual’s life.
A sample form that can be used to help conduct a psychopharmacologic interdisciplinary medication review.
Assessments & Practice Guidelines
This website includes information and resources to help clinicians, providers, and consumers better understand how to manage problem behaviors and psychosis in people with dementia using evidence-based approaches.
This includes approaches and tools for primary care providers.
Practice guidelines on the use of antipsychotics to treat agitation or psychosis in patients with dementia.
This implementation guide was developed by CaringKind, The Heart of Alzheimer’s Caregiving with the assistance of Comfort Matters®, as an outcome of the pilot project, Palliative Care for Advanced Dementia, Training and Implementation, the study of effective ways to implement the Comfort Matters® approach in three New York City nursing homes.
Initiatives & Innovations
A non-profit national advocacy and education organization of people living with dementia, care partners, friends and dementia specialists committed to creating a better country in which to live with dementia.
A non-profit organization that brings personalized music into the lives of the elderly or infirm through digital music technology, vastly improving quality of life.
Enhance life and relationships of those living with brain change by fostering an inclusive global community.
Leadership and care providers at the Villages of Southern Hills in Tulsa, OK support a national and state initiative to reduce unnecessary antipsychotic medication.
Gardening/Farming can be used as a physical therapy tool, and motivate recovering and elderly residents to look beyond themselves in the service of their local communities.
Giving to the community brings meaning to the lives of their patients and residents.
A white paper on how skilled human touch can transform person-centered dementia care.
British Journal of Psychiatry article overviewing a number of evidence-based non-pharmacological strategies for addressing agitation in dementia.
- Evidence-based Interventions to Support People with Alzheimer's Disease and their Caregivers at Home and in the Community
A white paper reviewing state of the art of non-pharmacological treatments and care practices for people with Alzheimer’s or other dementias and their family caregivers.
An Interdisciplinary Team Model that augments traditional behavioral health services, by offering “wrap around” care to elders within long term care settings.
A resource to help doctors decrease the over-prescription of antipsychotic medication in people with behavioural and psychological symptoms of dementia.
- Effectiveness of Expanded Implementation of STAR-VA for Managing Dementia-Related Behaviors Among Veterans
An interdisciplinary behavioral approach for managing challenging dementia-related behaviors.
A campaign to end the misuse of antipsychotic drugs as chemical restraints.
This guide is part of CANHR’s Campaign to Stop Chemical Restraints in nursing homes and other long-term care facilities.
A systematic review report, which covers following off-label uses of atypical antipsychotic medications for conditions, including dementia (Agency for Healthcare Research and Quality).
- Interventions to Reduce Inappropriate Prescribing of Antipsychotic Medications in People with Dementia
A systematic review article which assesses the effectiveness of interventions used to reduce inappropriate prescribing of antipsychotic medications to individuals with dementia in care homes (Journal of the American Medical Directors Association).
A report published by the World Health Organization and Alzheimer’s Disease International to raise awareness of dementia as a public health priority, in addition to articulate a public health approach and to advocate for action at international and national levels.
A research article quantifying the influence of a large-scale communication education training program (OASIS) on nursing home antipsychotic use (JAMA International Medicine).
Trainings & Webinars
Dr. Fisher explores non-pharmacological approaches in dementia care, including person-centered methods, to bring out the best in our dementia residents and help them engage and experience better quality of life.
A webinar focusing on tools and techniques that can be used in risk assessment and management of behaviors in patients with dementia.
A free Mobile App to educate everyone about Alzheimer’s disease and related dementias.
An online training focusing on caring for residents with dementia and on preventing abuse, developed by CMS in conjunction with a team of training developers and subject matter experts.
A downloadable training focusing on caring for residents with dementia and on preventing abuse, developed by CMS in conjunction with a team of training developers and subject matter experts.
The American Association for Geriatric Psychiatry is a membership association of geriatric psychiatrists and other health care professionals in the United States, Canada, and abroad, dedicated to the mental well-being of older adults.
A free collection of expert-contributed geriatric educational materials for educators and learners using an array of teaching methods, which are available digitally.
An international, non-profit 501(c)3 organization dedicated to creating quality of life for elders and their care partners, wherever they may live.
The NADRC provides technical assistance to grantees, as well as information and resources available to individuals and organizations outside the Alzheimer’s grantee community on Alzheimer’s disease or dementia.
QAPI tools and resources for the development and sustainably of an effective QAPI program for improving the quality of life, and quality of care and services delivered in nursing homes.
The GeriatricPain website provides nurses and other staff working as well as the interdisciplinary team in long-term care environments/geriatric care settings and informal caregivers with access to free evidence-based pain assessment tools, pain management strategies, and resources to help identify and manage pain in older adults.
A collaborative effort website merging resources for geropsychology training, service provision, policy, and research, including online assessment of geropsychology competencies, in a central internet location.
PLTC are dedicated to the enhancement of mental health and quality of life for residents, family and caregivers in long-term care through practice, research and advocacy.
The Office on Aging is the focal point for American Psychological Association activities pertaining to aging. Its overarching mission is to promote the application of psychological knowledge to issues affecting the health and well-being of older adults.
ASCP is a non-profit, membership association devoted to optimal medication management and improved health outcomes for all older adults. ASCP represents pharmacy professionals and students serving the unique medication needs of older adults in varies settings.
A national non-profit organization who is known for pioneering culture change and person-directed care in long-term care.
A website that provides consumers and caregivers with up-to-date information on health and aging.
- A Guide to the Management of Psychotic Disorders and Neuropsychiatric Symptoms of Dementia in Older Adults
Based on two publications by the American Geriatrics Society, this guide was developed to assist healthcare providers in managing psychotic symptoms and disorders in older adults.
- American Geriatrics Society (AGS) 2019 Updated AGS Beers Criteria for Potentially Inappropriate Medication (PIM) Use in Older Adults
An explicit list of PIMs that are typically best avoided by older adults in most circumstances or under specific situations, such as in certain diseases or conditions.
Located in rural New Hampshire, Genesis Lebanon Center, both a rehabilitative and long-term care facility outlines the incorporation of new initiatives with a “Just Do It” attitude approach towards the reduction of unnecessary antipsychotic usage.
A series of tables listing some drug classes and some specific drugs reported to cause psychiatric symptoms (The Medical Letter Adverse Drug Interactions Program).
Designed to identify caregiver and support staff approaches for communicating with and caring for people with dementia in skilled nursing facilities.
A white paper intended for understanding the impact that words and phrases can have on the well-being and lived experience of people who have dementia, and to provide preferred words/phrases, including the rationale for their use, as determined by a consensus of a number of people who are living with early-stage dementia.
A report following a round-table in partnership between Planetree and the Sodexo Institute for Quality of Life.
An article discussing the use of vaudeville to engage individuals living with dementia.