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Back to Medicare Coverage Document

View Public Comments for Reconstructive Treatments for Facial Lipodystrophy Syndrome

Use the selection criteria below to select the Comment Period for which you would like to view the comments for the selected document. You can use the alphabetical links above the results table to jump to comments submitted by a commenter whose last name starts with that letter. Select the 'Expand All Comments' link to view all the full comments, and click the 'Collapse All Comments' link to view only the abstract for all comments. Select the 'More' link in the Comment to view the full text of the specific comment in a new window.
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[186 Comments]
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First character of titleCommenterComment Information
A
Adams, John
View Full Comment in New Window opens in new window
Date: 02/05/2009
Comment:

I strongly support coverage for reconstructive treatments for facial lipodystrophy and urge the government to institute this policy. [PHI Redacted]

[PHI Redacted] has been affected by lipodystrophy, but More opens in new window
A
Adkins, Tom
View Full Comment in New Window opens in new window
Date: 01/28/2009
Comment:

The treatment of lipodystrophy by various facial fillers should be approved. There is significant documentation in the community and medically that certain drugs in a HAART HIV cocktail cause lipodystrophy as well as lipoatrophy. The result is More opens in new window

A
Ahumada, Ana
View Full Comment in New Window opens in new window
Date: 02/09/2009
Comment:

I think that should be covered,and not considered cometic surgery because of treatment outcomes.They are already fighting to have a life, and this condition also adds to serious depression, and anxiety for people living with this disease.Think More opens in new window

A
Alexander, Dorian-Gray
View Full Comment in New Window opens in new window
Title: Citizen Advocate
Date: 02/11/2009
Comment:

Affordable treatment to repair damage from facial lipoatrophy is greatly needed. I urge careful consideration and support reimbursement for reconstructive treatment.

Several individuals I know suffer with feelings of disfigurement, More opens in new window

A
Andrews, John
View Full Comment in New Window opens in new window
Date: 02/09/2009
Comment:

Please cover the cost of this treatment for people with HIV disease and other lipo- atrophy/wasting conditions. [PHI Redacted]

Treatments for other disease-related conditions are covered - this should be More opens in new window

A
Austin, Allan
View Full Comment in New Window opens in new window
Date: 02/10/2009
Comment:

Adding approval of effective treatment procedures to Medicare & insurance coverage protocol would be extreamly benificial for the physical & emotional well being of people living with HIV. Treatments available now, are too expensive More opens in new window

B
B, Tom
View Full Comment in New Window opens in new window
Date: 01/29/2009
Comment:

Reconstructive treatment for facial lipodystrophy would have a tremendous beneficial effect on the self image of people with facial wasting, thus encouraging them to seek employment and be less prone to depression. If women can have breast More opens in new window

B
Bardeguez, MD, MPH, Arlene
View Full Comment in New Window opens in new window
Organization: HIV Medicine Association
Date: 02/13/2009
Comment:

Revised Comments re: Coverage for Reconstructive
Treatments for Facial Lipodystrophy Syndrome

Dear Dr. Hambrick:

The HIV Medicine Association (HIVMA) is pleased that the Centers for Medicare and Medicaid Services (CMS) has More opens in new window

B
Beard, James
View Full Comment in New Window opens in new window
Title: Retired
Date: 01/31/2009
Comment:

It is not enough to treat just part of any illness. Seems to me that those "decision makers" would not have to be prodded to do the right thing and treat all aspects of an illness. The research supports that the Lipodystrophy Syndrome More opens in new window

B
Beasley, Joseph
View Full Comment in New Window opens in new window
Date: 02/05/2009
Comment:

Customer - 02/04/2009 05:22 PM
Treatment for facial wasting/butt wasting in patients with AIDS/advanced HIV disease should be covered by Medicaide/Medicare. It is crucial and certainly NOT "cosmetic". [PHI Redacted] More opens in new window

B
Benic, Jere
View Full Comment in New Window opens in new window
Date: 02/06/2009
Comment:

[PHI Redacted] Allowing medicaid to pay for treatment for this condition will greatly improve the lives of those afflicted with this medical condition. I can unequivocally state that treatment More opens in new window

B
Bennette, Sherri
View Full Comment in New Window opens in new window
Title: N/A
Organization: N/A
Date: 02/12/2009
Comment:

For once successful, divorced, middle aged women with HIV/AIDS it is hard enough to make friends, let alone meet a person of the opposite sex to date. The odds of ever getting married again are highly unlikely. Add to that the fact that More opens in new window

B
Berger MD, Daniel
View Full Comment in New Window opens in new window
Title: Medical Director; Clinical Associate Professor
Organization: Northstar Healthcare; University of IL at Chicago
Date: 01/27/2009
Comment:

As a physician, I've observed facial lipodystrophy to be associated with depression and anxiety that has required long term treatment. Additionally, patients have become less compliant and adherant to their HIV antiretroviral agents and are More opens in new window

B
Berry, Jeff
View Full Comment in New Window opens in new window
Title: Director of Publications
Organization: Test Positive Aware Network
Date: 01/30/2009
Comment:

[PHI Redacted] I am editor of a national HIV publication, Postively Aware, and in my line of work I recieve countless letters and emails from individuals all over the world who suffer from the same condition, many of them More opens in new window

B
Bocchino, Carmella
View Full Comment in New Window opens in new window
Title: EVP, Clinical Affairs and Strategic Planning
Organization: America's Health Insurance Plans (AHIP)
Date: 02/11/2009
Comment:

February 12, 2009

Steve Phurrough, MD, MPA
Director, Coverage and Analysis Group
Centers for Medicare and Medicaid Services
Mail Stop C1-09-06
7500 Security Boulevard
Baltimore, Maryland More opens in new window
B
Bongiorno, Anthony
View Full Comment in New Window opens in new window
Title: Executive Director & Founder
Organization: The Friends of AIDS Foundation
Date: 02/09/2009
Comment:

I feel strongly that these treatments should be covered. I have worked with hundreds of HIV positive individuals in support groups over the last three years, many of whom have had to deal with facial lipodystrophy. Although this is a condition More opens in new window

B
Boone, Jeff
View Full Comment in New Window opens in new window
Date: 01/29/2009
Comment:

Reconstructive treatment for Facial Lipodystrophy Syndrome is not about cosmetics or vanity. Walking around in life with a sunken skeletal face covered only by a thin layer of skin hinders not only ones self esteem, but also ones ability to More opens in new window

B
Broussard, Richard
View Full Comment in New Window opens in new window
Date: 02/04/2009
Comment:

It is vitally important for Medicare to inlude coverage for treatments of HIV-related facial wasting. The long-term effects of this debilitating condition takes it's ugly toll each and every day erroding a facial wasting sufferer's will to More opens in new window

B
Bryer, Lawrence
View Full Comment in New Window opens in new window
Date: 02/10/2009
Comment:

As a psychiatrist, I have seen many HIV patients whose facial wasting was severe, disfiguring, and a cause of stigma, depression, agoraphobia and other anxiety disorders. To call such cases cosmetic rather than reconstructive is to More opens in new window

B
Bucher MD, Gary
View Full Comment in New Window opens in new window
Title: Medical Director
Organization: Radius Health
Date: 02/11/2009
Comment:

I am a primary care physician that has been active in the care of HIV patients since the mid-80's and have seen many changes in the treatment of HIV disease. Unfortunately, the use of HAART or just the disease process itself casuses Facial More opens in new window

B
Butler, Edwin
View Full Comment in New Window opens in new window
Date: 02/04/2009
Comment:

I believe that Lipoatrophy Treatment should be covered by Medicare because without these treatments HIV positive people would feel embarrassment, and feelings of worthlessness that they would not feel if they could afford these treatments More opens in new window

B
BUTLER, TANK
View Full Comment in New Window opens in new window
Title: FACIAL LIPO
Organization: N/A
Date: 02/01/2009
Comment:

IT SHOULD BE COVERED BY MEDICARE BECAUSE OF THE DEPRESSION,STRESS,THOUGHTS OF SUICIDE,PEOPLE WHO STOP TAKING THERE MEDS AND PEOPLE WHO DONT WANT TO START MEDS BECAUSE OF THOSE SIDE EFFECTS PLUS MANY PEOPLE CANNOT AFFORD TO PAY FOR THE TREATMENTS More opens in new window

B
Bybee, Steven
View Full Comment in New Window opens in new window
Date: 02/05/2009
Comment:

Yes, it should be covered. An individuals face is the passport to how others perceive them. Depression, anxiety and even suicidal thoughts can accompany facial wasting. If it happens to me, I would want the chance to correct More opens in new window

C
Candelaria, Rey
View Full Comment in New Window opens in new window
Title: Past president
Organization: AIDS Treatment Activist Coalition
Date: 01/30/2009
Comment:

These treatments for facial lipodystrophy are not cosmetic but reconstructive in nature. No different than if a cancer patient needed reconstructive surgery after removal of a cancerous tissue. We should not have to continue to have this More opens in new window

C
Capogna, David
View Full Comment in New Window opens in new window
Date: 02/04/2009
Comment:

I'm writing in response to an article in POZ/AIDSmed.com. Living in NYC, people are more used to seeing walking skeletons on the street. After reading the AIDSmeds.com article, I was brought to tears some of the comment from small-town AIDS More opens in new window

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