First character of title | Commenter | Comment Information |
A
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Date: 02/05/2009
Comment:
I strongly support coverage for reconstructive treatments for facial lipodystrophy and urge the government to institute this policy. [PHI Redacted]
[PHI Redacted] has been affected by lipodystrophy, but
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Date: 01/28/2009
Comment:
The treatment of lipodystrophy by various facial fillers should be approved. There is significant documentation in the community and medically that certain drugs in a HAART HIV cocktail cause lipodystrophy as well as lipoatrophy. The result is
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Date: 02/09/2009
Comment:
I think that should be covered,and not considered cometic surgery because of treatment outcomes.They are already fighting to have a life, and this condition also adds to serious depression, and anxiety for people living with this disease.Think
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Title: Citizen Advocate
Date: 02/11/2009
Comment:
Affordable treatment to repair damage from facial lipoatrophy is greatly needed. I urge careful consideration and support reimbursement for reconstructive treatment.
Several individuals I know suffer with feelings of disfigurement,
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Date: 02/09/2009
Comment:
Please cover the cost of this treatment for
people with HIV disease and other lipo-
atrophy/wasting conditions. [PHI Redacted]
Treatments for other disease-related conditions
are covered - this should be
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Date: 02/10/2009
Comment:
Adding approval of effective treatment procedures
to Medicare & insurance coverage protocol would
be extreamly benificial for the physical &
emotional well being of people living with HIV.
Treatments available now, are too expensive
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B
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Date: 01/29/2009
Comment:
Reconstructive treatment for facial lipodystrophy would have a tremendous beneficial effect on the self image of people with facial wasting, thus encouraging them to seek employment and be less prone to depression. If women can have breast
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Organization: HIV Medicine Association
Date: 02/13/2009
Comment:
Revised Comments re: Coverage for Reconstructive Treatments for Facial Lipodystrophy Syndrome
Dear Dr. Hambrick:
The HIV Medicine Association (HIVMA) is pleased that the Centers for Medicare and Medicaid Services (CMS) has
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Title: Retired
Date: 01/31/2009
Comment:
It is not enough to treat just part of any illness. Seems to me that those "decision makers" would not have to be prodded to do the right thing and treat all aspects of an illness. The research supports that the Lipodystrophy Syndrome
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Date: 02/05/2009
Comment:
Customer - 02/04/2009 05:22 PM
Treatment for facial wasting/butt wasting in
patients with AIDS/advanced HIV disease should be
covered by Medicaide/Medicare. It is crucial and
certainly NOT "cosmetic". [PHI Redacted]
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Date: 02/06/2009
Comment:
[PHI Redacted]
Allowing medicaid to pay for treatment for this
condition will greatly improve the lives of those
afflicted with this medical condition. I can
unequivocally state that treatment
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Title: N/A
Organization: N/A
Date: 02/12/2009
Comment:
For once successful, divorced, middle aged women
with HIV/AIDS it is hard enough to make friends,
let alone meet a person of the opposite sex to
date. The odds of ever getting married again are
highly unlikely. Add to that the fact that
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Title: Medical Director; Clinical Associate Professor
Organization: Northstar Healthcare; University of IL at Chicago
Date: 01/27/2009
Comment:
As a physician, I've observed facial lipodystrophy to be associated with depression and anxiety that has required long term treatment. Additionally, patients have become less compliant and adherant to their HIV antiretroviral agents and are
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Title: Director of Publications
Organization: Test Positive Aware Network
Date: 01/30/2009
Comment:
[PHI Redacted] I am editor of a national HIV
publication, Postively Aware, and in my line of
work I recieve countless letters and emails from
individuals all over the world who suffer from
the same condition, many of them
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Title: EVP, Clinical Affairs and Strategic Planning
Organization: America's Health Insurance Plans (AHIP)
Date: 02/11/2009
Comment:
February 12, 2009
Steve Phurrough, MD, MPA
Director, Coverage and Analysis Group
Centers for Medicare and Medicaid Services
Mail Stop C1-09-06
7500 Security Boulevard
Baltimore, Maryland
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Title: Executive Director & Founder
Organization: The Friends of AIDS Foundation
Date: 02/09/2009
Comment:
I feel strongly that these treatments should be covered. I have worked with hundreds of HIV positive individuals in support groups over the last three years, many of whom have had to deal with facial lipodystrophy. Although this is a condition
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Date: 01/29/2009
Comment:
Reconstructive treatment for Facial Lipodystrophy
Syndrome is not about cosmetics or vanity. Walking
around in life with a sunken skeletal face covered
only by a thin layer of skin hinders not only ones
self esteem, but also ones ability to
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Date: 02/04/2009
Comment:
It is vitally important for Medicare to inlude coverage for treatments of HIV-related facial wasting. The long-term effects of this debilitating condition takes it's ugly toll each and every day erroding a facial wasting sufferer's will to
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Date: 02/10/2009
Comment:
As a psychiatrist, I have seen many HIV patients whose facial wasting was severe, disfiguring, and a cause of stigma, depression, agoraphobia and other anxiety disorders. To call such cases cosmetic rather than reconstructive is to
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Title: Medical Director
Organization: Radius Health
Date: 02/11/2009
Comment:
I am a primary care physician that has been active in the care of HIV patients since the mid-80's and have seen many changes in the treatment of HIV disease. Unfortunately, the use of HAART or just the disease process itself casuses Facial
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Date: 02/04/2009
Comment:
I believe that Lipoatrophy Treatment should be
covered by Medicare because without these
treatments HIV positive people would feel
embarrassment, and feelings of worthlessness that
they would not feel if they could afford these
treatments
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Title: FACIAL LIPO
Organization: N/A
Date: 02/01/2009
Comment:
IT SHOULD BE COVERED BY MEDICARE BECAUSE OF THE DEPRESSION,STRESS,THOUGHTS OF SUICIDE,PEOPLE WHO STOP TAKING THERE MEDS AND PEOPLE WHO DONT WANT TO START MEDS BECAUSE OF THOSE SIDE EFFECTS PLUS MANY PEOPLE CANNOT AFFORD TO PAY FOR THE TREATMENTS
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Date: 02/05/2009
Comment:
Yes, it should be covered. An individuals face is the passport to how others perceive them. Depression, anxiety and even suicidal thoughts can accompany facial wasting. If it happens to me, I would want the chance to correct
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C
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Title: Past president
Organization: AIDS Treatment Activist Coalition
Date: 01/30/2009
Comment:
These treatments for facial lipodystrophy are not cosmetic but reconstructive in nature. No different than if a cancer patient needed reconstructive surgery after removal of a cancerous tissue. We should not have to continue to have this
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Date: 02/04/2009
Comment:
I'm writing in response to an article in POZ/AIDSmed.com. Living in NYC, people are more used to seeing walking skeletons on the street. After reading the AIDSmeds.com article, I was brought to tears some of the comment from small-town AIDS
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