Skip to Main Content

CAHPS® Hospice Survey

Hospice Consumer Assessment of Healthcare Providers and Systems CAHPS® Survey

About this Page

The CAHPS® Hospice Survey webpage provides a description of the survey, its measures, and requirements. More details can be found on the technical survey webpage, www.hospicecahpssurvey.org.

For technical questions about the CAHPS® Hospice Survey, please contact the  CAHPS® Hospice Survey Project Team: hospicecahpssurvey@HCQIS.org or 1-844-472-4621.

To communicate with CMS staff about Survey implementation issues: hospicesurvey@cms.hhs.gov.

Survey Description

The CAHPS® Hospice Survey is a national survey of family members or friends who cared for a patient who died while under hospice care. The survey is conducted monthly. The questionnaire contains 47 questions covering topics of interest to family caregivers and hospice patients. Survey results are published as part of Hospice Compare on the www.Medicare.gov website.

Publicly reported data includes the following eight measures:

Measure Name

Questions from the Survey

Communication with family

Family caregivers reported how often the hospice team:

·    Kept them informed about when they would arrive to care for their family member

·    Explained things in a way that was easy to understand

·    Listened carefully to them when they talked about problems with their family member’s hospice care

·    Kept them informed about the family member’s condition

·    Listened carefully to them

·    Gave them confusing or contradictory information about their family member’s condition or care

Getting timely help

Family caregivers reported how often:

·    They got help as soon as they needed it, when they asked the hospice team for help

·    They got the help they needed from the hospice team during evenings, weekends, or holidays

Treating patient with respect

Family caregivers reported how often:

·    The hospice team treated their family member with dignity and respect

·    They felt the hospice team really cared about their family member

Emotional and spiritual support

Family caregivers reported about how much:

·    Emotional support they got from the hospice team while their family member was in hospice care

·    Emotional support they got from the hospice team in the weeks after their family member died

·    Support they got for their religious or spiritual beliefs

Help for pain and symptoms

Family caregivers reported whether their family member got as much help with pain as needed, and how often their family member got needed help for:

·   Pain

·    Trouble breathing

·    Trouble with constipation

·    Feelings of anxiety or sadness

Training family to care for patient

Family caregivers reported whether the hospice team gave them the training they needed about:

·    Side effects to watch for from pain medicine

·    If and when to give more pain medicine

·    How to help if their family member had trouble breathing

·    How to help of their family member became restless or agitated

Rating of this hospice

Family caregivers rated this agency on a scale of 0 (worst possible) to 10 (best possible)

Willing to recommend this hospice

Family caregivers reported how likely they would be to recommend this agency to other friends or family

 

Participation Requirements for Hospices

Hospices that have 50 or more survey-eligible patient/family caregiver pairs in a reference year are required to participate in the CAHPS® Hospice Survey in order to receive their full Medicare Annual Payment Update (APU).

The table below shows key dates with respect to Hospice survey data collection, including the data collection year, corresponding reference year, and the annual payment update that is impacted. It also includes the deadlines for submitting the size exemption form.

There are two exemptions from data collection for the CAHPS® Hospice Survey: size and newness. CAHPS® Hospice Survey exemptions DO NOT exempt hospices from HIS requirements.

  • Hospices that served fewer than 50 survey-eligible patient/family caregiver pairs during the reference year may apply for a size exemption from the CAHPS® Hospice Survey data collection requirements.To apply for the size exemption, fill out and submit the form available at www.hospicecahpssurvey.org. The size exemption is good only for one year. If you qualify for a second year, you must reapply for that year.
  • Hospices that received their CMS Certification Number (CCN) after January 1 of the data collection year will be automatically exempted from Survey participation for that year only. No form is necessary. However, we strongly urge hospices to save the letter they received providing them their CCN number.
  • Examples:
    • If your hospice had fewer than 50 survey-eligible patient/family caregiver pairs in 2015, you could have applied for a size exemption from Hospice CAHPS® Survey data collection in the calendar year 2016. The exemption would have been good only for 2016. The exemption would have impacted FY 2018 APU.
    • If your hospice received its CCN between January 1, 2016 and December 31, 2016, it would have been granted an automatic exemption from Hospice CAHPS® data collection for the calendar year of 2016, which would have impacted the FY 2018 APU. This exemption is good for one year only.

 

Key Dates for CAHPS® Hospice Survey Data Collection Years 2017 - 2022

Data Collection Calendar Year (CY)

Reference Year

Annual Payment Update Fiscal Year (FY) Impacted

Deadline for Size Exemption

CY 2017

2016

FY 2019

December 31, 2017

CY 2018

2017

FY 2020

December 31, 2018

CY 2019

2018

FY 2021

December 31, 2019

CY 2020

2019

FY 2022

December 31, 2020

CY 2021

2020

FY 2023

December 31, 2021

CY 2022

2021

FY 2024

December 31, 2022

 

For more details about participation requirements and CAHPS® Hospice Survey implementation, please visit the survey website, www.hospicecahpssurvey.org.

 

 

.